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Disability Visibility: First-Person Stories from the Twenty-First Century

door Alice Wong (Redacteur)

Andere auteurs: Zipporah Arielle (Medewerker), Patty Berne (Medewerker), Keah Brown (Medewerker), Diana Cejas (Medewerker), Rebecca Cokley (Medewerker)33 meer, Sky Cubacub (Medewerker), Wanda Díaz-Merced (Medewerker), Jen Deerinwater (Medewerker), June Eric-Udorie (Medewerker), Karolyn Gehrig (Medewerker), Haben Girma (Medewerker), Eugene Grant (Medewerker), Harriet Tubman Collective (Medewerker), Ariel Henley (Medewerker), Jamison Hill (Medewerker), Sandy Ho (Medewerker), Harriet McBryde Johnson (Medewerker), Shoshana Kessock (Medewerker), Talila A. Lewis (Medewerker), Reyma McCoy McDeid (Medewerker), Lateef McLeod (Medewerker), Stacey Milbern (Medewerker), Liz Moore (Medewerker), Leah Lakshmi Piepzna-Samarasinha (Medewerker), Mari Ramsawakh (Medewerker), A. H. Reaume (Medewerker), Ellen Samuels (Medewerker), Keshia Scott (Medewerker), Alice Sheppard (Medewerker), Elsa Sjunneson (Medewerker), Jessica Slice (Medewerker), s.e. smith (Medewerker), Christie Thompson (Medewerker), Ricardo S. Thornton Sr. (Medewerker), Jillian Weise (Medewerker), Britney Wilson (Medewerker), Jeremy Woody (Medewerker), Maysoon Zayid (Medewerker)

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1207174,426 (4.16)2
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1-5 van 7 worden getoond (volgende | toon alle)
This is a powerful, essential collection of disability narratives by disabled voices, and it should be read by everyone who ever does any kind of disability advocacy work or similar work. It is a beautifully written book that displays how diverse and multi-faceted the disabled experience is, and that there is no one monolithic viewpoint on disability, or even for a specific disability. I am definitely going to recommend this to my disability-centric employee resource group at work; there is a wealth of knowledge in here that cannot be missed. ( )
  sarahlh | Mar 6, 2021 |
Some really interesting stories and essays but many really not very well written or compelling so hard to recommend overall ( )
  AccyP | Jan 24, 2021 |
“…paid what is known as ‘subminimum wage.’ It is still legal to pay disabled people for piecework, or pennies for the hour…” (due to an egregious exemption: section 14(c) in the [American] Fair Labor Standards Act)

“…if you can’t fast, give…”

O you, who believe. Fasting is prescribed for you as it was prescribed for those before you, that you may become Al-Muttaqun (the pious). (Fasting) for a fixed number of days, but if any of you is ill or on a journey, the same number (should be made up) from other days. And as for those who can fast with difficulty, (i.e. an old man, etc.), they have (a choice either to fast or) to feed a poor person (for every day). But whoever does good of his own accord, it is better for him. And that you fast, it is better for you if only you know.” (Qur’an, 2:183-84)

“who can…” -It's not offered by a human (from a hadeeth). It’s bestowed by Allah (from the Quran)

Astonishingly, disability is the least significant marker of Disability Visibility: First-Person Stories from the Twenty-first Century, a remarkable anthology on adversity, endurance and triumph. People (perceptive people) will want to elevate individuals in this book to superhuman endurability, but it is recognition enough to know: no human being is ever more sovereign than this.

The content notes are a best practice I invite the publishing industry to consider aspiring towards or at least being cognizant of albeit that profanity is as offensive as any a content note.
  AAAO | Oct 1, 2020 |
As this month marks the 30th anniversary of the Americans with Disabilities Act, this seemed like a good read. I had seen author Wong on Twitter and while essays are not really my thing, figured it seemed like a good pickup. This is a collection of essays from various disabled people who discuss different aspects of their lives. From romance to working in a job to how they became disabled (for some) to how they cope, etc. People of various genders, sexual orientations, races, places in their lives, etc.

Overall I agree with the negative reviews. Essay collections are always hit or misses with me. There are several really good pieces of writing here. But for every one good piece, there are several others that could have used a better editor, maybe more thought or perhaps were really not the right fit for this type of book (for example, there's a TED Talk which may or may not work for you as text-only).

In the end, though, it was an important read and there will be people out there who will see themselves or someone they know in these essays and these writers got their pieces published. And I also appreciated that many of these pieces also have content notes, as the text deals with everything from ableism to racism to misogyny to sexual assault, etc.

This was a book that was best for me as a e-book read. Would recommend as a library borrow. ( )
  HoldMyBook | Jul 14, 2020 |
There are some powerful authors in this collection. Wong is the founder of The Disability Visibility Project. In this time when so many with disabilities find it even harder to get help readers will get a variety of essays exposing inequalities. There’s an essay about the inequality of health care for native people. There’s another very eye-opening about how patients are vulnerable in the hospital in which the author works. Things like finding adaptive clothe, and the high rats of disability among LGBTQ people. This isn’t the book with the answers, this is the book that should start discussion about the inequalities and how people with disabilities should expect more and deserve more. ( )
  brangwinn | Jul 12, 2020 |
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» Andere auteurs toevoegen

AuteursnaamRolType auteurWerk?Status
Wong, AliceRedacteurprimaire auteuralle editiesbevestigd
Arielle, ZipporahMedewerkerSecondaire auteuralle editiesbevestigd
Berne, PattyMedewerkerSecondaire auteuralle editiesbevestigd
Brown, KeahMedewerkerSecondaire auteuralle editiesbevestigd
Cejas, DianaMedewerkerSecondaire auteuralle editiesbevestigd
Cokley, RebeccaMedewerkerSecondaire auteuralle editiesbevestigd
Cubacub, SkyMedewerkerSecondaire auteuralle editiesbevestigd
Díaz-Merced, WandaMedewerkerSecondaire auteuralle editiesbevestigd
Deerinwater, JenMedewerkerSecondaire auteuralle editiesbevestigd
Eric-Udorie, JuneMedewerkerSecondaire auteuralle editiesbevestigd
Gehrig, KarolynMedewerkerSecondaire auteuralle editiesbevestigd
Girma, HabenMedewerkerSecondaire auteuralle editiesbevestigd
Grant, EugeneMedewerkerSecondaire auteuralle editiesbevestigd
Harriet Tubman CollectiveMedewerkerSecondaire auteuralle editiesbevestigd
Henley, ArielMedewerkerSecondaire auteuralle editiesbevestigd
Hill, JamisonMedewerkerSecondaire auteuralle editiesbevestigd
Ho, SandyMedewerkerSecondaire auteuralle editiesbevestigd
Johnson, Harriet McBrydeMedewerkerSecondaire auteuralle editiesbevestigd
Kessock, ShoshanaMedewerkerSecondaire auteuralle editiesbevestigd
Lewis, Talila A.MedewerkerSecondaire auteuralle editiesbevestigd
McDeid, Reyma McCoyMedewerkerSecondaire auteuralle editiesbevestigd
McLeod, LateefMedewerkerSecondaire auteuralle editiesbevestigd
Milbern, StaceyMedewerkerSecondaire auteuralle editiesbevestigd
Moore, LizMedewerkerSecondaire auteuralle editiesbevestigd
Piepzna-Samarasinha, Leah LakshmiMedewerkerSecondaire auteuralle editiesbevestigd
Ramsawakh, MariMedewerkerSecondaire auteuralle editiesbevestigd
Reaume, A. H.MedewerkerSecondaire auteuralle editiesbevestigd
Samuels, EllenMedewerkerSecondaire auteuralle editiesbevestigd
Scott, KeshiaMedewerkerSecondaire auteuralle editiesbevestigd
Sheppard, AliceMedewerkerSecondaire auteuralle editiesbevestigd
Sjunneson, ElsaMedewerkerSecondaire auteuralle editiesbevestigd
Slice, JessicaMedewerkerSecondaire auteuralle editiesbevestigd
smith, s.e.MedewerkerSecondaire auteuralle editiesbevestigd
Thompson, ChristieMedewerkerSecondaire auteuralle editiesbevestigd
Thornton Sr., Ricardo S.MedewerkerSecondaire auteuralle editiesbevestigd
Weise, JillianMedewerkerSecondaire auteuralle editiesbevestigd
Wilson, BritneyMedewerkerSecondaire auteuralle editiesbevestigd
Woody, JeremyMedewerkerSecondaire auteuralle editiesbevestigd
Zayid, MaysoonMedewerkerSecondaire auteuralle editiesbevestigd
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Disability is not a brave struggle or "courage in the face of adversity." Disability is an art. It's an ingenious way to live.
—Neil Marcus

Remember, you weren't the one

Who made you ashamed,

But you are the one

Who can make you proud.
—Laura Hershey

The word special, as it is applied to disability, too often means "a bit shit."—Stella Young
Informatie afkomstig uit de Engelse Algemene Kennis. Bewerk om naar jouw taal over te brengen.
To my younger self and all the disabled kids today who can't imagine their futures.
The world is ours, and this is for all of us.
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