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Childhood leukemia : a guide for families, friends & caregivers

door Nancy Keene

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This most complete parent guide covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. This third edition contains significant updates to the information on treatments, chemotherapy drugs, bone marrow transplants, coping with side effects, and resources. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.… (meer)
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My daughter was diagnosed with leukemia in June of 2007. This book was given to me in the hospital, shortly after her diagnosis. It took a few months for the initial shock of diagnosis to wear off, before I felt able to read and process the information in this book. But once I started reading it, the book became a great reference for me. The section on the different medications, their uses and side effects was especially helpful and I referred to it many times.

I enjoyed reading what other parents and children had to say about this disease. Their thoughts were interspersed throughout the book and I always found them informative. As I began looking for other books on the subject, I realized that this is the best and most complete reference book out there for childhood leukemia. Nancy Keene has done a great job in gathering together information and presenting it in a readable and understandable way. Four years later, my daughter is still in treatment, and I still refer to this book. I have recently purchased Ms. Keene's book [b:Childhood Cancer Survivors: A Practical Guide to Your Future|303064|Childhood Cancer Survivors A Practical Guide to Your Future (Childhood Cancer Guides)|Nancy Keene|http://photo.goodreads.com/books/1173555016s/303064.jpg|294120] to help us navigate the years ahead. ( )
  readingover50 | Jun 11, 2019 |
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This most complete parent guide covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. This third edition contains significant updates to the information on treatments, chemotherapy drugs, bone marrow transplants, coping with side effects, and resources. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.

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