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Osler's Web (1996)

door Hillary Johnson

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9013303,174 (4.28)4
In a masterful effort of investigative reporting, freelance journalist Hillary Johnson reveals for the first time how Chronic Fatigue Syndrome was allowed to grow over the course of a decade into a major public health threat under the disbelieving and ultimately blind eye of the American medical research establishment.… (meer)
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1-5 van 13 worden getoond (volgende | toon alle)
Fascinating history of this controversial disease. Anti-climatic end, ( )
  RFBrost | Nov 2, 2017 |
This is by far my favorite book of all time!

Thank you, Hillary Johnson, for taking on the monumental task of documenting the egregious crimes against us ME"cfs" (Myalgic Encephalomyelitis aka "cfs") sufferers by Stephen Strauss and others at NIH and CDC. I was on the edge of my seat even on my fourth reading of this true crime thriller! Your heart will be pumping with adrenaline and outrage as you race through yet another "Oh My God!" moment where another damning piece of evidence is laid bare. As a trial lawyer myself, I've never seen such a riveting and clear case made out of such complicated facts.

A lot of progress has been made since the book came out- basically CDC and others finally admitting much of what Johnson said in the book. I still wonder about some of the things for which Johnson made a great case, but have essentially been forgotten. For example, it seems clear to me that the human retrovirus discovered by Dr. Elaine Defritas is a cause of ME, but it hasn't been discussed in the literature in more than a decade. Ampligen is finally nearing approval; I wonder if it is the wonder drug portrayed in the book. And I continue to see reports in the media of more ME patients dying of previously extraordinarily rare cancers such as Burkitt's Lymphoma, but this continues to be ignored by the scientific journals.

All people with ME and their families would benefit enormously from reading Osler's Web. Osler's Web made me feel the catharsis that a disbelieved rape victim must feel when a skilled prosecutor, in open court, makes it clear beyond a shadow of a doubt that the defendant did in fact rape her; that she is not a liar, but instead a victim of a terrible crime.

Physicians, public health workers, other health workers and indeed anyone who wants to see how a serious epidemic can be hidden in plain sight by the public health service should read this immensely important work. ( )
  JustinReilly | Jul 23, 2016 |
This is by far my favorite book of all time!

Thank you, Hillary Johnson, for taking on the monumental task of documenting the egregious crimes against us ME"cfs" (Myalgic Encephalomyelitis aka "cfs") sufferers by Stephen Strauss and others at NIH and CDC. I was on the edge of my seat even on my fourth reading of this true crime thriller! Your heart will be pumping with adrenaline and outrage as you race through yet another "Oh My God!" moment where another damning piece of evidence is laid bare. As a trial lawyer myself, I've never seen such a riveting and clear case made out of such complicated facts.

A lot of progress has been made since the book came out- basically CDC and others finally admitting much of what Johnson said in the book. I still wonder about some of the things for which Johnson made a great case, but have essentially been forgotten. For example, it seems clear to me that the human retrovirus discovered by Dr. Elaine Defritas is a cause of ME, but it hasn't been discussed in the literature in more than a decade. Ampligen is finally nearing approval; I wonder if it is the wonder drug portrayed in the book. And I continue to see reports in the media of more ME patients dying of previously extraordinarily rare cancers such as Burkitt's Lymphoma, but this continues to be ignored by the scientific journals.

All people with ME and their families would benefit enormously from reading Osler's Web. Osler's Web made me feel the catharsis that a disbelieved rape victim must feel when a skilled prosecutor, in open court, makes it clear beyond a shadow of a doubt that the defendant did in fact rape her; that she is not a liar, but instead a victim of a terrible crime.

Physicians, public health workers, other health workers and indeed anyone who wants to see how a serious epidemic can be hidden in plain sight by the public health service should read this immensely important work. ( )
  JustinReilly | Jul 23, 2016 |
This is by far my favorite book of all time!

Thank you, Hillary Johnson, for taking on the monumental task of documenting the egregious crimes against us ME"cfs" (Myalgic Encephalomyelitis aka "cfs") sufferers by Stephen Strauss and others at NIH and CDC. I was on the edge of my seat even on my fourth reading of this true crime thriller! Your heart will be pumping with adrenaline and outrage as you race through yet another "Oh My God!" moment where another damning piece of evidence is laid bare. As a trial lawyer myself, I've never seen such a riveting and clear case made out of such complicated facts.

A lot of progress has been made since the book came out- basically CDC and others finally admitting much of what Johnson said in the book. I still wonder about some of the things for which Johnson made a great case, but have essentially been forgotten. For example, it seems clear to me that the human retrovirus discovered by Dr. Elaine Defritas is a cause of ME, but it hasn't been discussed in the literature in more than a decade. Ampligen is finally nearing approval; I wonder if it is the wonder drug portrayed in the book. And I continue to see reports in the media of more ME patients dying of previously extraordinarily rare cancers such as Burkitt's Lymphoma, but this continues to be ignored by the scientific journals.

All people with ME and their families would benefit enormously from reading Osler's Web. Osler's Web made me feel the catharsis that a disbelieved rape victim must feel when a skilled prosecutor, in open court, makes it clear beyond a shadow of a doubt that the defendant did in fact rape her; that she is not a liar, but instead a victim of a terrible crime.

Physicians, public health workers, other health workers and indeed anyone who wants to see how a serious epidemic can be hidden in plain sight by the public health service should read this immensely important work. ( )
  JustinReilly | Jul 23, 2016 |
This is by far my favorite book of all time!

Thank you, Hillary Johnson, for taking on the monumental task of documenting the egregious crimes against us ME"cfs" (Myalgic Encephalomyelitis aka "cfs") sufferers by Stephen Strauss and others at NIH and CDC. I was on the edge of my seat even on my fourth reading of this true crime thriller! Your heart will be pumping with adrenaline and outrage as you race through yet another "Oh My God!" moment where another damning piece of evidence is laid bare. As a trial lawyer myself, I've never seen such a riveting and clear case made out of such complicated facts.

A lot of progress has been made since the book came out- basically CDC and others finally admitting much of what Johnson said in the book. I still wonder about some of the things for which Johnson made a great case, but have essentially been forgotten. For example, it seems clear to me that the human retrovirus discovered by Dr. Elaine Defritas is a cause of ME, but it hasn't been discussed in the literature in more than a decade. Ampligen is finally nearing approval; I wonder if it is the wonder drug portrayed in the book. And I continue to see reports in the media of more ME patients dying of previously extraordinarily rare cancers such as Burkitt's Lymphoma, but this continues to be ignored by the scientific journals.

All people with ME and their families would benefit enormously from reading Osler's Web. Osler's Web made me feel the catharsis that a disbelieved rape victim must feel when a skilled prosecutor, in open court, makes it clear beyond a shadow of a doubt that the defendant did in fact rape her; that she is not a liar, but instead a victim of a terrible crime.

Physicians, public health workers, other health workers and indeed anyone who wants to see how a serious epidemic can be hidden in plain sight by the public health service should read this immensely important work. ( )
  JustinReilly | Jul 23, 2016 |
1-5 van 13 worden getoond (volgende | toon alle)
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Informatie afkomstig uit de Engelse Algemene Kennis. Bewerk om naar jouw taal over te brengen.
The edifice of medicine reposes entirely upon facts ... truth cannot be elicited but from those which have been well and completely observed.

- Sir William Osler, Counsels and Ideals
Emulating the persistence and care of Darwin, we must collect facts with open-minded watchfulness, unbiased by crotchets or notions: fact on fact, instance on instance, experiment upon experiment; facts which fitly jointed together by some master who grasps the idea of their relationship, may establish a general principle
- Sir William Osler, Counsels and Ideals
To get an accurate knowledge of any disease it is necessary to study a large series of cases and to go into all the particulars - the conditions under which it is met, the subjects specially liable, the various symptoms, the pathological changes, the effects of drugs ... in the faculty of observations, the old Greeks were our masters, and we must return to their methods if progress [is] to be made.
- Sir William Osler, Counsels and Ideals
No men among us need refreshment and renovating more frequently than those who occupy positions in our schools of learning. Upon none does intellectual staleness more readily steal "with velvet step, unheeded, softly," but nonetheless relentlessly ... These unrefreshed, unregenerate teachers are often powerful instruments of harm, and time and again have spread the blight of blind conservatism in the profession. Safely enthroned in assured positions, men of strong and ardent convictions, with faithful friends and still more faithful students, they too often come within the scathing condemnation of the blind leaders of the blind, of those who would neither themselves enter into the profession of new knowledge nor suffer those who would enter.
- Sir William Osler, Counsels and Ideals
Locke's remark that "Truth scarce ever yet carried it by vote anywhere at its first appearance" is borne out by the history of discoveries of the first rank.
- Sir William Osler, An Alabama Student and Other Biographical Essays
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For my mother, Ruth Hines Jones (1928-1993)
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Her first patient had suggested someone in the initial stages of an autoimmune disease, most probably lupus or multiple sclerosis.
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In a masterful effort of investigative reporting, freelance journalist Hillary Johnson reveals for the first time how Chronic Fatigue Syndrome was allowed to grow over the course of a decade into a major public health threat under the disbelieving and ultimately blind eye of the American medical research establishment.

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