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What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt

door Tessa Miller

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Biography & Autobiography. Health & Fitness. Medical. Nonfiction. HTML:A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.
/> Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she tried to push through the searing pain, taking time off work and staying home, glued to the toilet. But when it became glaringly apparent something was wrong, Miller gave in to her family's requests and went to the hospital-and thus started a years-long personal nightmare that included procedures, misdiagnoses, and life-threatening infections. Once Miller was finally correctly diagnosed with Crohn's disease, she had yet another new battle to face: accepting that she will, in truth, never get better.
Today, 3 in 5 adults in the United States suffer from a chronic ailment, whether the illness is endometriosis, IBD, IBS, Crohn's, ulcerative colitis, asthma, depression, anxiety, diabetes, or any other chronic ailment. However, despite the prevalence of these illnesses and the impact they have on just about everyone-whether the sufferer is a colleague, a loved one, or you personally-there remains an air of shame and isolation around the topic. Millions endure these diseases alone, not only physically but also emotionally, balancing the stress of relationships and work amidst the ever-looming threat of health complications.
Moving from Miller's maddening yet all too relatable experience into a deeper look at how the medical community handles chronic illness, What Doesn't Kill You exposes the realities of what it means to accept a lifetime diagnosis, pushing past the good, the bad, and the ugly to offer wisdom and solidarity for those trying to make sense of it all.
*This audiobook includes a PDF of resources from the appendix of the book..… (meer)
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Toon 5 van 5
I picked this up thinking it was a memoir of acquiring and adapting to chronic illness, which it is. But it is contextualized within the nightmare of the American health care system* and workplace demands of constant productivity. It is also something of a guidebook to navigating those systems, with 8 appendices of specific advice and resources. Recommended.

*The US does not have a health care system. It has health care markets. ( )
  LizzK | Dec 8, 2023 |
A young writer’s unflinching account of her battle with Crohn’s disease ... a blend of harrowing memoir and self-help tips ... Miller intersperses vivid tales of her struggle with a hard sell for talk therapy and pages of overfamiliar advice on coping with chronic diseases ... Frank reflections and well-worn advice on living with an incurable disease. ( )
  Iqrakhalid | Sep 12, 2022 |
The author has had it rough (to say it mildly), but she does an amazing job at sharing her story about being diagnosed with Crohn’s disease. But alongside her story, she shares information and advice on living with chronic illness that is truly beneficial; I most appreciated all she had to say about mental health. ( )
  spinsterrevival | May 8, 2022 |
I received a free copy of this book directly from the publisher, and I'm grateful for the opportunity to read this and write a review.

A powerful combination memoir and guide on how to navigate chronic illness in the US, Miller writes both of her own experiences and offers advice on how to deal with the changes wrought by chronic illness. The resources in the back of this I think could be very helpful; she writes about how to find a therapist who specializes in the changes of life and trauma associated with chronic illness, how to find a good doctor, and also reveals how absolutely garbage our healthcare system here is in the US. Her own journey of course is also really enlightening; she doesn't hold back in examining how her own privileges help her get the care she needs, and also how capitalism and the structure of work in the US really further damaged her health.

I think this could be really helpful for anyone facing chronic illness or pain--it really does cover a lot of important ground, and it doesn't pretend there are easy answers for any of the challenges that arise. ( )
1 stem aijmiller | Aug 16, 2021 |
3.5 Crohn's disease IBD, both I've heard of but this is the first time I've read about these very serious issues. In a honest, no hold barred way, the author portrays just how devastating these conditions are but how it detailed her life and how she learned to cope. Like many of us with chronic conditions she went through a cycle of incorrect diagnoses, failing treatment options and trial and error medications. I truly admire her strength. She went through a horrendous time.

The facts and figures she presents on our healthcare, how so little, including mental health is unavailable to those who need it most. So often even if available the cost is prohibitive. This was eye opening for me, I didn't realize how truly awful this is, for so many.

She offers us glimpses into her personal life and ultimately offers advice, hope. Advocate for yourself, take care of yourself, your brain, your well being which are all integral to self acceptance, paths forward. As with all chronic diseases, there are many stresses, periods of depression, self doubt but reading her story provides one with commanalities and a shared focus. Much advice is the same as other books on the subject of living with a condition that one learns is never leaving but her story is unique as our conditions are unique to us.

ARC from Netgalley. ( )
1 stem Beamis12 | Mar 10, 2021 |
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Biography & Autobiography. Health & Fitness. Medical. Nonfiction. HTML:A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.
Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she tried to push through the searing pain, taking time off work and staying home, glued to the toilet. But when it became glaringly apparent something was wrong, Miller gave in to her family's requests and went to the hospital-and thus started a years-long personal nightmare that included procedures, misdiagnoses, and life-threatening infections. Once Miller was finally correctly diagnosed with Crohn's disease, she had yet another new battle to face: accepting that she will, in truth, never get better.
Today, 3 in 5 adults in the United States suffer from a chronic ailment, whether the illness is endometriosis, IBD, IBS, Crohn's, ulcerative colitis, asthma, depression, anxiety, diabetes, or any other chronic ailment. However, despite the prevalence of these illnesses and the impact they have on just about everyone-whether the sufferer is a colleague, a loved one, or you personally-there remains an air of shame and isolation around the topic. Millions endure these diseases alone, not only physically but also emotionally, balancing the stress of relationships and work amidst the ever-looming threat of health complications.
Moving from Miller's maddening yet all too relatable experience into a deeper look at how the medical community handles chronic illness, What Doesn't Kill You exposes the realities of what it means to accept a lifetime diagnosis, pushing past the good, the bad, and the ugly to offer wisdom and solidarity for those trying to make sense of it all.
*This audiobook includes a PDF of resources from the appendix of the book..

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